Perthes.org is committed to rare disease advocacy through education. Our goal is to provide a resource for parents and caregivers of children battling Perthes disease as well as become an online community of patients, friends, family, and survivors.
Perthes.org depends on community volunteers to advocate for those affected by Perthes disease. Involve your local community and government, cheer on a Perthes hero, or share your story!
Knowledge is power. A founding goal is to empower families and patients by supplying accurate and concise information. Access our Perthes Toolkit to receive information on physical and occupational therapy, navigating the school system and more.