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Live Stream 2019 Perthes Family Conference

If you aren't able to make it to Dallas this year, you can still join us! Click here to live stream the 2019 Perthes Conference. Kicking off at 8am Central Time.

Download Agenda

$60.00
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Our Cause

Our Mission

Perthes.org is committed to rare disease advocacy through education. Our goal is to provide a resource for parents and caregivers of children battling Perthes disease as well as become an online community of patients, friends, family, and survivors.

Community Involvement

Perthes.org depends on community volunteers to advocate for those affected by Perthes disease. Involve your local community and government, cheer on a Perthes hero, or share your story!

Education

Knowledge is power. A founding goal is to empower families and patients by supplying accurate and concise information. Access our Perthes Toolkit to receive information on physical and occupational therapy, navigating the school system and more.

Research

Perthes disease was identified more than 100 years ago; however, it seems there are still more questions than answers. In part, your donations to LCPF will help fund new research monitoring patient treatments and long term outcomes. You can also become part of the research by filling out one of our surveys!

Our History

We believe that every child deserves an active and healthy childhood! Through advocacy, community, and research we can ensure that Perthes disease doesn’t take that away.

In 2017 Legg Calve Perthes Foundation was formed to help fill the gap between diagnosis, or suspected diagnosis, and the “healed” stage. LCPF’s mission is to create a centralized support community to improve the research, education, and awareness of those diagnosed with Perthes. Through the ups and downs, the questions, the tears, and the triumphs, we are one community united with a common goal of understanding and strength.

 
Live Stream 2019 Perthes Family Conference

If you aren't able to make it to Dallas this year, you can still join us! Click here to live stream the 2019 Perthes Conference. Kicking off at 8am Central Time.

Download Agenda

$60.00
Processing ...

Our History

We believe that every child deserves an active and healthy childhood! Through advocacy, community, and research we can ensure that Perthes disease doesn’t take that away.

In 2017 Legg Calve Perthes Foundation was formed to help fill the gap between diagnosis, or suspected diagnosis, and the “healed” stage. LCPF’s mission is to create a centralized support community to improve the research, education, and awareness of those diagnosed with Perthes. Through the ups and downs, the questions, the tears, and the triumphs, we are one community united with a common goal of understanding and strength.

Read More About Perthes Disease in Our Blog

Griffin Gorringe

Griffin's Perthes story started 4 years ago when he was 6 years old. He had severe pain in the hip. We took him in for an x-ray and he was diagnosed with Toxic Synovitis. The pain got better and he returned to normal. A few months later he started having pain again that was not as severe so we stretched, rested, and it seemed to help.

Rare Disease Week 2019

#ShowYourRare is the interactive social media campaign for Rare Disease Day. You can get involved during the month of February  by painting your face and
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