It’s appointment time!
You have an appointment with the surgeon! You already have your dedicated Perthes binder, full of x rays and medical information. You have called and confirmed arrangements with your insurance company. Now what?
In the weeks leading up to the appointment it’s important to take a few minutes and think of some questions for the surgeon and medical team. Take this time to look at the habits of your child and your family. Make note of your child’s diet, favorite activities, as well as “trouble zones,” activities that cause your child pain or that may pose a challenge if a wheelchair or brace is recommended.
As you think of questions, write them down and take that list to the appointment. We’ve put together some common questions and things to think about just to get you started.
How many Perthes patients do you treat in a year?
What are treatment options?
Explain the risks and benefits to each treatment?
What are the expected outcomes of each treatment?
-And what is the time frame for results with each treatment?
What are the long term effects of treatment; is this information available?
What is the estimated financial burden of the treatment; is there a representative at the hospital / facility that I can call to discuss this with?
What restrictions are recommended?
If your child has a particular hobby, interest, or after school activity, it’s important to ask specifically if that activity needs modification.
What medical/adaptive equipment is recommended?
If your home or your child’s school has stairs or narrow doorways, for example, these might be important considerations. Your surgeon may be able to offer some creative solutions to make daily life easier. They have the benefit of having seen many Perthes patients, after all.
When are follow up appointments scheduled; how often?
Considering this can help parents plan for time off work and expenses associated with travel to the facility, if applicable.
What are things we can do at home for…
- Pain management
- Increasing range of motion
- Maintaining strength
Are there any diet or nutrition recommendations at this time?
Do you/the hospital/facility routinely work with or recommend a specific PT, OT, nutritionist, or psychologist?
What is the policy for questions I may have between appointments?
A positive experience depends on more than just treatment. Your family and the medical-surgical team are building a relationship. If you think there is information relevant to your child’s situation, let your surgeon know. And let us know too! What additional questions have you asked your surgeon or medical team?
Download this list here: https://perthes.org/projects-archive/questions-for-the-appointment/