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Category: Stories

With a rare disease, every prognosis, experience and outcome is different. We are happy to share some amazing Perthes Stories from patients, parents and others. What’s your Perthes Story?

Bryson Quinn
Perthes Stories

Bryson Quinn

Brysons perthes story begins when he was six years old. He was a very typical, active, boy and enjoyed playing baseball at a competitive level. He was participating in several baseball clinics over the summer…

by LeggCalvePerthes Foundation
- Feb. 22, 2019
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Through Adversity Comes Triumph - Isaac Hess
Stories

Through Adversity Comes Triumph - Isaac Hess

I knew I wanted to play professional baseball from the time I was 10 years old and realized what it felt like to drive a baseball over the fence, experienced the smell of my glove…

by LeggCalvePerthes Foundation
- Feb. 04, 2019
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Stories

Stay Strong and Keep Moving - my Perthes Journey

My Perthes story begins as a young child, in the same fashion as most other children around the World. I was healthy, active, eager and for all outward appearances, normal. Complaining of left leg and…

by Zach King
- Feb. 04, 2019
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Cameron Mathison Is the Happiest He’s Ever Been
Stories

Cameron Mathison Is the Happiest He’s Ever Been

Things haven’t always been smooth sailing for Cameron Mathison. During his early childhood in Sarnia, Canada, he was diagnosed with Legg-Perthes disease, a hip disorder that limits the range of motion in the hip joint.

by Zach King
- Feb. 04, 2019
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Healthy Attitude About Fitness Inspires Teaching Career
Perthes Stories

Healthy Attitude About Fitness Inspires Teaching Career

As a kid growing up in Escondido, Kristin Stehly played soccer and did gymnastics, hiked with her parents and enjoyed exercise and the positives that came from it. As a girl, Stehly also had Legg-Calve-Perthes…

by Zach King
- Feb. 04, 2019
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Perthes Stories

  • Bryson Quinn
  • Discovering Perthes – One Mothers Story
  • Brannon’s Story
  • Cameron Mathison Is the Happiest He’s Ever Been
  • Healthy Attitude About Fitness Inspires Teaching Career
  • Young, Hip and Horsey
  • How Jack Pedals Through Perthes
  • Through Adversity Comes Triumph
  • Stay Strong and Keep Moving

Upcoming Events

  1. Cameron Mathison on Who Wants to Be a Millionaire

    February 27
  2. Rare Disease Day 2019 #showyourrare

    February 28
  3. 3rd Annual Perthes Family Conference

    October 5 @ 8:00 am - 5:00 pm

View All Events

2018 Perthes Conference

Perthes.org Board of Directors at the 2018 IPSG Annual Meeting
Dr. Charles Mehlman, Cincinnati Children’s Hospital
Dr. Harry Kim, Texas Scottish Rite Hospital
Open Q&A Panel with Surgeons
Parents, Grandparents, and Caregivers all gather in Dallas, TX at the 2018 Perthes Conference
Co-founders of Perthes.org: Colleen Rathgeber and Shelley Crawford

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Copyright 2019 LeggCalvePerthesFoundation. All rights reserved.
Legg Calve Perthes Foundation is a registered 501(c)(3) charity organization, EIN/Tax ID: 82-2121017. All content provided by LCPF, Perthes.org, is intended for informational purposes only. LCPF can not diagnose any disease or disorder nor endorse or recommend any specific medical treatment. Patients are encouraged to discuss any questions or concerns specific to their situation with a qualified healthcare practitioner.
“NORD and the NORD logo are registered trademarks of the National Organization for Rare Disorders. NORD is a registered 501(c)(3) charity.”
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