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Community & Events

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Upcoming Events


The 2nd Annual Perthes Family Conference is scheduled to take place on Saturday, October 20th, 2018 at the Texas Scottish Rite Hospital for Children in Dallas, Texas. This full day event will be complete with topics that matter most to those navigating Perthes. Last year’s topics include: Updates from the International Perthes Study Group, Adjusting to Life with Perthes, Maximizing Movement with Perthes, and an open panel discussion with top Perthes Surgeons!

As the agenda is finalized, more details will be released!


Past Events


Perthes.org #GivingTuesday is here!

Why Give to Perthes.org? As a start up Foundation completing a full year in operation, we continue to be powered by endless passion for advocating for a loved one, family member, or by personal experience with Perthes Disease. Perthes.org offers educational materials, hours of webinars, print outs, toolkits, annual Parents conference, rare disease awareness worldwide and

What can you give on #GivingTuesday?

There is a lot of focus on what a child with Perthes can’t do. Perthes.org supports what a child can do … and how you can help! If you could give a child back the joy of childhood, would you? If you could ease the worry of how a family will afford adaptive equipment, would you? For as

New Research Showcased at NORD Summit

The Legg Calve Perthes Foundation, in partnership with Dr. Harry Kim of the Texas Scottish Rite Hospital for Children and the University of Texas Southwestern Medical Center in Dallas, Texas has been selected to showcase preliminary laboratory results of this research at the 2018 National Organization of Rare Disorders (NORD) annual summit. The NORD Summit

Perthes.org NORD Research Poster

** FOR IMMEDIATE RELEASE** Preliminary Laboratory Testing Indicates Positive Outcome in the Treatment of Legg-Calve-Perthes Disease OCTOBER 11TH 2018 – WASHINGTON DC The Legg Calve Perthes Foundation, in partnership with Dr. Harry Kim of the Texas Scottish Rite Hospital for Children and the University of Texas Southwestern Medical Center in Dallas, Texas has been selected to

In the News


Legg Calve Perthes Foundation Welcomes Mr. Cameron Mathison, Actor and Host, as Honorary Board Member

Washington, DC, July 13, 2018 — The Legg Calve Perthes Foundation, dedicated to improving research, education, and awareness of Perthes, voted in a new Board member this month. Mr. Cameron Mathison is a well-known TV personality, host, and actor. Mathison has extensive personal experience with Perthes, living with Perthes as a child himself. “The Board is enthusiast with the addition of Cameron to the Legg Calve Perthes Foundation mission. This alliance will serve as a conduit to new audiences and continued awareness of Perthes,” said Foundation founder Colleen Rathgeber.

Mr. Mathison will serve alongside esteemed surgeons who have dedicated their careers to the rare childhood disease; Dr. Harry Kim of Texas Scottish Rite Hospital for Children, Dr. Wudbhav Sankar of Children’s Hospital of Philadelphia, Dr. Jennifer Laine of Gillette Children’s Specialty Healthcare, and rising Physician’s Assistant; Shelley Crawford of Marion, VA.

Mr. Cameron Mathison, a Canadian born actor, currently lives in Los Angeles CA with wife and two children. He spent several years of his career as an actor on ABC’s “All My Children.” Mathison currently works a co-host on Entertainment Tonight and star of several Hallmark Network movies and Hallmark’s Home and Family series.

Cameron is a loving father, proud husband, Emmy winning host, health and fitness enthusiast, and deeply rooted to philanthropic endeavors. “I am very grateful for the opportunity to serve as an honoree board member to a cause that is so meaningful and personal to me,” Cameron said.


Legg Calve Perthes Foundation Blog

Follow our blog for regular content about Perthes disease and the Perthes community! We have regular contributors who you’ll get to know as they blog about Surviving Perthes, Parenting through Perthes, Staying Active with Perthes, and Clinical Applications of Perthes including disease information, new research and treatments, PT, OT, Psychology, and more.


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Legg-Calve-Perthes Foundation, Inc. is organized for exclusively religious, charitable, educational and scientific purposes within the meaning of Section 501(c)(3) of the Internal Revenue Code of 1986 or the corresponding provision of any future United States Internal Revenue Law, including, for such purposes, the making of distributions to organizations that qualify as exempt organizations under said Section 501(c)(3) of the Internal Revenue Code of 1986. Specifically, the organization will provide educational programs to the public regarding Perthes as well as benevolent assistance to those in need. EIN/Tax ID: 82-2121017.


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