Has your child recently been diagnosed with Legg Calve Perthes Disease? Are you feeling overwhelmed and looking for answers? We have your back! As a parent of a child who received an unexpected rare disease…
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3rd Annual Perthes Family Conference
The 3rd Annual Perthes Family Conference is scheduled to take place on Saturday, October 5th, 2019 at the Texas Scottish Rite Hospital for Children in Dallas, Texas. This full day event will be complete with…
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Griffin Gorringe
Griffin’s Perthes story started 4 years ago when he was 6 years old. He had severe pain in the hip. We took him in for an x-ray and he was diagnosed with Toxic Synovitis. The…
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Rare Disease Day 2019 #showyourrare
Join us to SHOW YOUR RARE in 2019! Download the flyer here to learn more! Facebook Comments
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Cameron Mathison on Who Wants to Be a Millionaire
On Tuesday 2/26/19, tune in to watch Cameron Mathison as a contestant on Who Wants to Be a Millionaire!! The fan fave will take on the classic 14-question game opposite host Chris Harrison and…
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Rare Disease Week 2019
#ShowYourRare is the interactive social media campaign for Rare Disease Day. You can get involved during the month of February by painting your face and sharing a photo using the hashtag #ShowYourRare in solidarity with…
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