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NORD Rare Summit
- Oct. 15, 2018 - - Oct. 16, 2018
Join Perthes.org at the NORD at the annual Rare Diseases and Orphan Products Breakthrough Summit Oct 16-17 in Washington DC
Prior Authorization, Step Therapy and Other Access Challenges
Addressing Access Challenges for Orphan Products
Patient Advocacy for Diagnosis & Drug Development
This year’s discussion will include topics close to the hearts of families dealing with Perthes. Have you have ever wondered “Why don’t we know more about Perthes?” Or “How can I help drive research and change?” What about “Why has it taken so long to be diagnosed with Perthes?
This year patients, advocates, and policy makers will gather together to discuss those questions and more. Hear the direction of policy and research that pertains directly to your family! Speak up and let your voice be heard! Join us this year in Washington, DC!
How Patients Are Helping Drive Research and Drug Development
The role of patients, caregivers and patient organizations in research and drug development has undergone fundamental changes in recent years. This panel will look at innovative collaborations and how these new patient roles are helping to advance research and development of therapies.
Solving the Diagnosis Challenge
Delay in diagnosis remains a serious problem for all stakeholders in the rare disease community. What is the outlook for reducing time to diagnosis and what are the specific challenges – scientific and financial – that need to be overcome?