Family Assistance Fund

Have you heard about the Family Assistance Fund?

Through the Legg-Calve-Perthes Foundation’s annual Family Conference and feedback from countless parents and caregivers around the world, we have identified the need for financial assistance for eligible families.

In the rare disease community, nearly half of all families report needing to borrow money from friends and family to pay for treatment. That is often after exhausting medical benefits and personal savings. Equipment and therapy can be expensive and beyond the insurance or medical aid benefit. Furthermore, parents and caregivers often report significant time away from work for doctor visits.

The trauma of Perthes disease can be devastating to a family. No one should have to worry about the mounting medical costs of treatment and travel associated with treatment. The Legg-Calve-Perthes Foundation’s Family Assistance Fund can help eligible families receive aid for:

  • Wheelchairs
  • Ramps
  • Bathroom Adaptations/Equipment
  • Adaptive Clothing
  • Travel
  • and more!

We are currently raising funds for the Family Assistance Fund and anticipate our first grant(s) will be delivered to families in 2019! Check back often to learn updates to the Family Assistance Fund and the application process.

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